Tuesday 22 January 2013

Adventures with breast cancer: Radiotherapy and Steve

Adventures with breast cancer: Radiotherapy and Steve: Two big things to write about today, one lovely and one less than lovely. I've started radiotherapy, now on day 5 of 20 sessions, and this i...

Sunday 6 January 2013

Adventures with breast cancer: Waiting

Adventures with breast cancer: Waiting: I'm now tattooed with 4 tiny dots, one on my neck on in the middle of my chest, and the other two on the outer edges of my chest. It wasn't ...

Waiting

I'm now tattooed with 4 tiny dots, one on my neck on in the middle of my chest, and the other two on the outer edges of my chest. It wasn't the best half hour of my life, and it was a fairly impersonal procedure as I guessed it would be, but strangely, afterwards I was ever so slightly euphoric. This tattooing event had been on the outer edges of my worry radar for over 6 months, working it's way towards a major anxiety moment as the date got closer and closer. Now it's over, I can tick that box and move on, and I do feel just a tiny little bit proud of myself for having got past it.

The tattoos are strategically placed so that the radiotherapy beams are aimed at exactly the right places, and to ensure that my heart stays safe and well away from the rays. I had to have 3 CT scans first, and they taped very thin wires over all my scars beforehand. I also had to put my arms in stirrups above my head - why is it that my face always develops irritating little itches as soon as I'm not allowed to scratch them?

The best bit was the hot chocolate and cake afterwards with WM, as I knew it would be.

This week, just as I thought I was going to be emerging from chemo boot-camp, filled with energy and motivation to really get things done, another set of symptoms have loomed their ugly little heads, knocking me for six in the process.

For some reason, my muscles have absolutely no strength whatsoever, and they seem to be getting worse. The effort of going upstairs, or even getting dressed is so arduous that I'm puffing and panting for ages until I get my breath back. I can't walk more than 10 or 12 paces before I'm behaving like I've just run half a marathon, and it's all absolutely crippling, as well as being really annoying.

I'm fine sitting down, which luckily I'm really skilled at, but any movement at all finishes me off. My big worry is that it's some sort of side effect from Herceptin. That might mean that they take me off it, which would be really scary. Herceptin has been available in the UK only since 2006, and it is already responsible for increasing my type of breast cancer survival rate by 40%, so I do feel like it's my insurance policy. I'm due for my third dose tomorrow, and I'll be seeing the Oncologist beforehand, so I can tell them about it then and see what they think it might be.  An even worse scenario would be that it's a sign of the cancer getting worse and spreading, but I'm trying not to even go there with my thoughts. I'm pretty sure that, whatever it is, I'll be scheduled up to the eyeballs with a thousand more test and investigations, when all I really want to do is catch up with some living normally after all those months of surgery and chemo, but it looks like that will just have to wait.

One thing that really can't wait any longer is a new laptop. This one is now well beyond its sell-by date, and the final straw was a lovely glass of red wine being tipped all over it at Christmas. It took several days before it would turn on, and at first, it was obviously still very tipsy, with all the keys typing the wrong letters. It's now virtually recovered, apart from the letter "D", which just will not function at all, so the only way I can write anything is to use the online keyboard every time I need a "D", which is painfully slow and very annoying. It's not just the glass of wine that's finished it off - it's getting slower and slower and very eccentric. Just like me, really, though I'm not yet at the stage that I need a week to recover from a glass of wine.

Anyhow, I got all excited about the new generation of laptops, with Windows 8 and it's new capacity for touchscreen operation, coupled with the new convertible range that all the manufacturers are launching. Basically they now make laptops that convert into tablets, with all sorts of mechanisms whereby the keyboard folds under itself to be a stand, or even one which has two screens, so someone on the other side of the table can follow what you're doing. Maybe a mixed blessing, but I think this feature can be turned on and off, so you can still keep your secrets. Anyway, I was so excited by the prospect of buying one, until I saw the prices. They cost 2 to 3 times as much, so I'll just have to wait until everyone else has one, and they don't cost an arm and a leg anymore.

Unless........I can find a way to afford it that doesn't entail starvation, because, let's face it, I've already done a stack of waiting, and all this cancer waiting certainly teaches you that sometimes life is just too short.



Whatever it is

Friday 4 January 2013

Adventures with breast cancer: The Tattoo Parlour

Adventures with breast cancer: The Tattoo Parlour: Today I have what they euphemistically call my "Radiation Planning Meeting". It sounds so cosy and civilised, doesn't it? Please don't be ta...

The Tattoo Parlour

Today I have what they euphemistically call my "Radiation Planning Meeting". It sounds so cosy and civilised, doesn't it? Please don't be taken in my it. We won't be sitting around a big table in a nice modern conference room, chatting about planning until they wheel in the coffee and biscuits after 45 minutes. Oh no chance. This is cancer treatment, there's very little that's nice about it. 

Looks like I'll be stripped down to the waist like a huge lump of meat, then strapped onto a table which will then propel my body towards some futuristic green lights, and then it will be "ouch" "ouch" and "OUCH" several times while they make tattoo marks on my chest so that once radiotherapy gets underway in a couple of weeks, they have target practice marks so they know where to aim the rays. 

Hello, I'm needle-phobic? Does cancer care? Oh no, it loves to have a laugh at my expense. Frightened to death? Absolutely, I am. The whole procedure sounds so clinically impersonal and inhumane. 

WM doesn't know it yet, but he will be whisking me off straight afterwards for a mint hot chocolate and a very comfort-food cake, or maybe even several. That is, if I survive the next couple of hours.  Wish me luck!