Thank you for visiting my blog. This was supposed to be about Breast cancer, and later, my stage 4 breast cancer, but then it became about much more. Healthcare in general, the challenges of parenting disabled children, and also documented the writing of my book, The Special Parent's Handbook. Hopefully you'll find something here that will resonate in some way with you, and if you'd like to read more, particuarly about special needs parenting, please visit my website http://yvonnenewbold.com/
Showing posts with label Side-effects. Show all posts
Showing posts with label Side-effects. Show all posts
Sunday, 11 November 2012
Adventures with breast cancer: Hibernation
Adventures with breast cancer: Hibernation: Sometimes this cancer thing really does creep up and knock me for six, never more so than in the past three days where I've been virtually b...
Hibernation
Sometimes this cancer thing really does creep up and knock me for six, never more so than in the past three days where I've been virtually bed-bound with feeling absolutely awful. The chemo side-effects of this cycle have been totally overwhelming, and I just haven't been able to fight it at all. Every bone aches like crazy, and even the strongest pain-killers only lift the edge of it. I'm moving around as if I'm 103, and the pain jumps unexpectedly from one bone to the next, like some really high-tech laser light show. Then all my finger and toe nail beds have become a bit loose, and even the slightest pressure hurts like mad. Typing like I'm doing now really isn't much fun at all. All I can do is lie in bed most of the time, and I haven't even got the energy to adjust the duvet if there's a bit of a cold draught. Then on top of all of that, the killer runs started overnight, and I spent most of the night on the loo feeling extremely ill. The soles of my feet have blistered, so walking is very slow and painful, and my tongue has swollen, is really sore, and making eating and drinking a real ordeal. This evening, the skin in my mouth has started to peel as well, which gets stuck in an already very sore throat, so I feel like I'm choking.
Then there's the total exhaustion, sleeping is all I want to do, but a lot of the time the pain just keeps me awake, so I just can't sleep. Instead, all sorts of thoughts flit across my brain, and annoyingly, the good ones seem to pass by and I can never quite collect them properly.
It's when I feel this ill, which has only happened a couple of times during this six-month-long adventure, that I start to actually believe that I'm not going to make it. Depression is lurking as an ever-present threat, but I haven't let it take hold yet, and will do everything I can to stave it off at the moment.
Depression is the real enemy with cancer, and although it's fine to have the odd day when things just don't seem too great, full-blown depression is something that I'm determined to guard against. There is so much research that show that people who remain hopeful are more likely to survive, and I know that mental attitude is every bit as important as the pharmaceutical weaponary that's being used to save my life.
So I don't like the side-effects of chemo, but I have to remember that I absolutely love chemo itself. If it's doing this to me, it must be really obliterating any stray little cancer cells into oblivion. It's giving me a real fighting chance of being around to meet the grandchildren, and for me, the only way to deal with the difficult bits of chemo is to just remember that this is transient, and it's doing me stacks of good. Gratitude as well helps - 30 years ago there simply wasn't the technology to save my life, and even today, in many parts of the world, this sort of treatment simply wouldn't be available to me.
So, I'm trying to regard what I'm currently dealing with as a very precious few days of hibernation. A chance to just stop, shut-down from real-life for a few days, with a chance to perhaps think and plan too, and to count my blessings.
A lovely piece of research I read yesterday really did bring this into focus. Women with breast cancer, who also have a strong social connection with friends, family and community, have a staggering 61% better survival rate that those who are socially isolated. If that's the case, then I'm virtually home and dry, because my friends and family have really stepped up to this challenge, and have carried me through the past few months with continuous love, support and laughter. WM though, deserves a very special mention. He is doing everything for me, and everything for my kids that I can't do at the moment, always with good grace, patience and humour. I have to get through this, and out healthy on the other side, just so that somehow, I may get a chance to make it all up to him.
Then there's the total exhaustion, sleeping is all I want to do, but a lot of the time the pain just keeps me awake, so I just can't sleep. Instead, all sorts of thoughts flit across my brain, and annoyingly, the good ones seem to pass by and I can never quite collect them properly.
It's when I feel this ill, which has only happened a couple of times during this six-month-long adventure, that I start to actually believe that I'm not going to make it. Depression is lurking as an ever-present threat, but I haven't let it take hold yet, and will do everything I can to stave it off at the moment.
Depression is the real enemy with cancer, and although it's fine to have the odd day when things just don't seem too great, full-blown depression is something that I'm determined to guard against. There is so much research that show that people who remain hopeful are more likely to survive, and I know that mental attitude is every bit as important as the pharmaceutical weaponary that's being used to save my life.
So I don't like the side-effects of chemo, but I have to remember that I absolutely love chemo itself. If it's doing this to me, it must be really obliterating any stray little cancer cells into oblivion. It's giving me a real fighting chance of being around to meet the grandchildren, and for me, the only way to deal with the difficult bits of chemo is to just remember that this is transient, and it's doing me stacks of good. Gratitude as well helps - 30 years ago there simply wasn't the technology to save my life, and even today, in many parts of the world, this sort of treatment simply wouldn't be available to me.
So, I'm trying to regard what I'm currently dealing with as a very precious few days of hibernation. A chance to just stop, shut-down from real-life for a few days, with a chance to perhaps think and plan too, and to count my blessings.
A lovely piece of research I read yesterday really did bring this into focus. Women with breast cancer, who also have a strong social connection with friends, family and community, have a staggering 61% better survival rate that those who are socially isolated. If that's the case, then I'm virtually home and dry, because my friends and family have really stepped up to this challenge, and have carried me through the past few months with continuous love, support and laughter. WM though, deserves a very special mention. He is doing everything for me, and everything for my kids that I can't do at the moment, always with good grace, patience and humour. I have to get through this, and out healthy on the other side, just so that somehow, I may get a chance to make it all up to him.
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