Thank you for visiting my blog. This was supposed to be about Breast cancer, and later, my stage 4 breast cancer, but then it became about much more. Healthcare in general, the challenges of parenting disabled children, and also documented the writing of my book, The Special Parent's Handbook. Hopefully you'll find something here that will resonate in some way with you, and if you'd like to read more, particuarly about special needs parenting, please visit my website http://yvonnenewbold.com/
Showing posts with label Baldness. Show all posts
Showing posts with label Baldness. Show all posts
Wednesday, 10 October 2012
Adventures with breast cancer: The cancer photo-shoot
Adventures with breast cancer: The cancer photo-shoot: Anita came over last night and wielded a camera to capture for posterity my newly acquired eclectic collection of crazy hats, and she is ...
Labels:
Baldness,
Breast Cancer,
chemo,
Chemotherapy,
hair loss,
hats,
losing hair,
photos,
wigs
The cancer photo-shoot
Anita came over last night and wielded a camera to capture for posterity my newly acquired eclectic collection of crazy hats, and she is the only person I've ever met who can take a photo of me that might not frighten small children. They say that cancer changes people, and it has already made me much more confident to be a bit eccentric in a hat-wearing sort of way, and I thought you might like to meet them!

Another purple one but with a Donny O theme again
Next, some photos of the wig, which I'm loving more and more and getting stacks of compliments about. The other day in Tesco I bumped into someone I hadn't seen for over a year, and first thing she says is "Oh Yvonne, your hair looks fabulous!". Now most people would have a little dignity, and say "Thank you, you are most kind". Not me I'm afraid. Instead I went "Ooh, do you really think so, you'll never guess, but it's a WIG! I've got breast cancer!" as though having the BC is the most excitingly marvellous thing that could happen to anyone. I think the whole shop, and maybe even those in the street outside, heard me, and must have thought "She's a totally crazy, unhinged madwoman". A few months ago I'd have wanted the ground to swallow me up in embarrassment, but now, with this new freedom that cancer has somehow given me, I just let my newly-found eccentricity have a little bit of party-fun.
Back to the wig - can't you just see why I love it! Two pictures of the front this time, and one of the side so you can see just what a fabulous cut they gave it.
.

I still haven't had many opportunities to wear it yet, and I'm slowly building up tolerance so that today I managed 3 full hours before it started to get hot and itchy. The one thing that is a bit annoying is that if a stray hair ends up in my eyes, because it's made of nylon it feels as sharp as a needle. It's a small price to pay for having completely hassle-free low-maintenance fabulous hair for the first time ever!
The last photo turns the table on my lovely, kind, talented, intelligent, witty friend Anita, and isn't she just gorgeous too?!
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| Bright purple, like the lady in the poem |
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| A favourite - but hope I don't look like a lampshade |
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| I love it so much that it deserves 2 photos |
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| Hardly the most flattering - more like Benny from Crossroads |
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| First I bought some turquoise shoes, then found a matching bag, and now I've got the hat..... is there a T-shirt too, I wonder? |
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| This is my "look she's got cancer" hat, and Anita wanted me doing belly-dance moves to match the turban style - or is it because I already have the perfect belly-dance physique? |
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| When you get cancer, you're somehow expected to wear scarves, but the having surgery in both armpits malarkey makes it very difficult to tie them at the back without blindfolding yourself |
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| This one is perfectly ridiculous but beautifully brightly multicoloured, and shows me for what I really am at heart - a Donny Osmond teenybopper |
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| This one really shows off Anita's photographic genius - a naked-headed photo that I'm happy to go public with |

Another purple one but with a Donny O theme again
Next, some photos of the wig, which I'm loving more and more and getting stacks of compliments about. The other day in Tesco I bumped into someone I hadn't seen for over a year, and first thing she says is "Oh Yvonne, your hair looks fabulous!". Now most people would have a little dignity, and say "Thank you, you are most kind". Not me I'm afraid. Instead I went "Ooh, do you really think so, you'll never guess, but it's a WIG! I've got breast cancer!" as though having the BC is the most excitingly marvellous thing that could happen to anyone. I think the whole shop, and maybe even those in the street outside, heard me, and must have thought "She's a totally crazy, unhinged madwoman". A few months ago I'd have wanted the ground to swallow me up in embarrassment, but now, with this new freedom that cancer has somehow given me, I just let my newly-found eccentricity have a little bit of party-fun.
Back to the wig - can't you just see why I love it! Two pictures of the front this time, and one of the side so you can see just what a fabulous cut they gave it.
.

I still haven't had many opportunities to wear it yet, and I'm slowly building up tolerance so that today I managed 3 full hours before it started to get hot and itchy. The one thing that is a bit annoying is that if a stray hair ends up in my eyes, because it's made of nylon it feels as sharp as a needle. It's a small price to pay for having completely hassle-free low-maintenance fabulous hair for the first time ever!
The last photo turns the table on my lovely, kind, talented, intelligent, witty friend Anita, and isn't she just gorgeous too?!
If you’d like to buy a copy of Yvonne Newbold's book, “The Special Parent’s Handbook”, here’s the link to the Amazon Page:
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Labels:
Baldness,
Breast Cancer,
chemo,
Chemotherapy,
hair loss,
hats,
losing hair,
photos,
wigs
Wednesday, 19 September 2012
Pulling my hair out
The hair has to go, and very quickly. The Lovely Mr Lovely has sent me a copy of a letter he has sent to my equally lovely Chemo guru, suggesting that, since I seemed to have very little in the way of post-chemotherapy symtoms, perhaps I was under-dosed. Everyone I've told about this seems to think it's hilariously funny, but I really don't want a double dose next week, so I need to be a bald as a coot to prove that my little cancer cells have been sufficiently ravaged by it.
So, everyone at home is completely grossed out by my new addictive habit of tugging handfuls of hair out. Personally, I find it fascinating, it's just so wierd to run my hands through my hair and loads of it coming away. This has been going on now for two whole days, and despite the fact that I feel like I've pulled away enough to stuff a couple of cushions, I actually still look like I have a whole head of perfectly copious hair. I have to wear a hat when I go out now, just in case it all suddenly decides to go out, and my kids won't let me cook their food at the moment in case I moult all over their dinner. So poor WM is on chef duty in our kitchen this week, which beautifully lets me off the hook.
Losing your hair is supposed to be one of the most traumatic parts of having cancer, so I've surprised even myself by how much I'm enjoying it so far. But that's the funny thing about this disease - things you think will hit you hard just don't, and things you think you'll take totally in your stride can send you over the edge into a dark black pit of misery. Both can happen too; maybe in a day or two I'll find the whole bald number heartbreaking, but I'm nowhere near there yet.
I heard a theory about cancer patients this week, that they fall into two distinct catergories, the Tiggers and the Eeyores. I think I'm mostly Tigger with the odd moment when Eeyore pops his head up and overwhelms me with misery, but luckily that doesn't happen often, and when it does, it doesn't last very long.
This last week, the misery has mostly been miles away. It's been a lovely week, I've had absolutely no hospital or any other appointments, I've felt reasonably well - certainly well enough to go out to dinner three times and to engage in a touch of retail therapy too. I've even driven the car for only the second time in three months, and the mastectomy scar is sufficiently healed to tolerate a seat belt. I've experimented with new underwear and I've found a bra make that holds the falsie in place so securely and in the right place that I almost forget that it's not my own one.
WM let me help him choose a new car, I've spent stacks of time just chilling with all three of the children, catching up with friends, and just feeling relatively normal for the first time since early May. Downton Abbey's return is just the icing on this week's cake.
I wish I could shift the procrastination though. The to do list gets longer and longer with each passing day, and the house gets more and more untidy and dirty. I have energy galore for about 10 minutes in a burst, then I just flop. The admin and paperwork is now more of a mountain range than a single mountain, and if I'm not careful something that I really should have done but haven't is going to turn round and bite me on the bum very soon. I get to the stage where I don't even know where to start, and the starting is scary, because once I explore that pile I'll find all sorts of reasons to be consumed in guilt, and feel pants for the rest of the week.
Going back to chemo symptoms, I now don't think I got away completely scot-free. The first 10 days I was comprehensively washed out, and although the consuming gallons of water and fasting beforehand did the trick in terms of stopping me feeling sick, even walking from the kitchen to the front room seemed like a marathon. Eating is another marathon, I just don't register hunger, and the weight is falling off, not quite as quickly as the hair, but still pretty good. As well as the hair disappearing, my mouth feels like someone's taken sandpaper and razor blades to it, nothing tastes right, even my staple, my precious cups of tea, taste like the milk went off last year. The chest pain that arrived a few days after chemo hasn't subsided yet, and in a bad moment, despite the medical reassurance I've had, I convince myself that it's the cancer spreading. Hopefully it's just a little know rare side-effect, but I really wish it would bog-off somewhere else.
Somehow I've got to find the wherewithall to sort out the paperwork and the house. I bought myself a new present which arrived today, a Dyson vacuum cleaner. It's still in its box in the hallway, hopefully giving the impression to any new visitors that, OK, the house is a tip, but I'm just about to sort it out. We all have special talents, and mine definitely isn't housework, but once I get going with the Dyson, I'm hopefully going to be galvinised into action, if for no other reason than to clear up all my fallen hair. Otherwise my kids will never eat at home again.
My GP has summoned me to see him later this week, and I haven't a clue why, but something about wanting to talk about my current hospital treatment. Hopefully they haven't decided that my family has single-handedly bankrupted the NHS and I'm never to darken their doorstep again, but I'll let you know. I'm due to see their new trainee GP, who the receptionist enigmatically told me "He's very popular with the ladies". Maybe another Mr Lovely in the making? I'll let you know about that too.
I've got a few more days before Chemo episode 2 next week, so there's time to fit a lot of stuff in. Paperwork and cleaning, obviously, but also maybe a few good books and a some quiet nights in watching TV. Feeling fairly well, apart from this constant chest pain, is such a strange, but lovely, experience after all these months of feeling pants, that I've almost forgotten how to relax and enjoy. I'm sure, with a bit of practice, I'll get very good at it again soon. And if I don't, then I'll obviously need to practice it even more.
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